Living with dementia is a complex journey that impacts not just individuals, but entire families and support networks. The Guiding an Improved Dementia Experience (GUIDE) program is a groundbreaking initiative designed to provide comprehensive support for those navigating the challenges of dementia.
What Makes GUIDE Unique?
As the first dementia care management program funded by the Centers for Medicare & Medicaid Services (CMS), GUIDE represents a significant advancement in how we approach dementia care. Dr. Hillary Lum, a doctor who cares for older adults and medical director for the GUIDE program at the University of Colorado, emphasizes the program's innovative approach:
"This is the first time Medicare has chosen to fund a comprehensive dementia care program that includes caregivers. For the first time, we're seeking to understand how caregivers can benefit from comprehensive support as they are supporting people with dementia."
Program Eligibility
Participants must meet specific criteria:
- Diagnosed with dementia
- Covered by traditional Medicare (not Medicare Advantage)
- Living at home or in assisted living
- Encouraged to participate with family caregivers
Comprehensive Support Services
The GUIDE program offers an extensive range of support services:
- Annual comprehensive dementia assessment with a specialized physician
- Monthly check-ins with a dedicated GUIDE care navigator
- Personalized, person-centered care plans
- Regular medication reviews focusing on cognitive health
- Coordination with community resources and support services
- Transitional care support during healthcare changes
- In-home safety assessments for eligible participants
- Respite services for eligible participants
- Ongoing caregiver education and support
The Role of Care Navigators
Adreanne Tatro, the GUIDE program manager, explains the critical role of care navigators:
"We've heard patients describe our care navigators as a friend on the inside, a lifeline, a motivator or a rock. Our role is to provide education, resources and support."
Approach to Care
The program's primary focus is building meaningful relationships. As Tatro explains:
"Sometimes that looks like problem solving and discussing a challenging situation and providing resources. Other times that can look like providing a listening ear or providing affirmation about what is going well in the midst of a challenging situation."
Commitment to Accessibility
GUIDE emphasizes equal access to care, with a particular focus on reaching underserved communities. The program helps individuals with dementia maintain their independence while ensuring caregivers have the necessary resources.
Dr. Lum clarifies an important point:
"Patients who are enrolled in the GUIDE program will continue to see their regular primary care physicians and specialists like neurologists. The GUIDE team and care navigator is like a friend who coordinates and is with them on their dementia journey."
Getting Started
If you believe the GUIDE program could benefit you or a loved one:
- Contact the GUIDE program team at 303-724-3141
- Discuss eligibility requirements
- Begin the enrollment process
- Potentially schedule comprehensive assessment visits at the UCHealth Seniors Clinic
The GUIDE program is more than just a care service – it's a comprehensive support system designed to help patients and families navigate the challenges of dementia with compassion, expertise, and personalized care.
Contact: GUIDE Program Team at 303-724-3141
